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Gathering of parents and friends of girls with Rett syndrome

Gathering of parents and friends of girls with Rett syndrome

As is practically tradition, the meeting was held after a longer break, and so the participants’ enthusiasm was all the greater. We first listened to a presentation about the Tobii computer, after which we talked about ourselves, our expectations. and the experiences we would like share with each other. Tonička and Evička were in the care of our volunteers Marie, Aneta, Gabriela and Lucie.

Thank you.

On 1 April 2014, several teachers met for a talk with Lenka Kohoutková, a long-time assistant for a girl with Rett syndrome and a board member of the Rett Community civic association. She gave us a vibrant description of her experiences from a Dutch workshop at the international Rett syndrome conference. We discussed the use of the Big Mac switch at schools in Israel and the Netherlands, forms of communication, and ideas for school activities for girls with RTT. The meeting was pleasant and inspirational, and we are looking forward to working together in the future.

M. Tupá


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